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Welcome to Dake's Blog

This blog is designed to give you updates on Dake as he enters his journey to Johns Hopkins/Kennedy Krieger Institue Center in Baltimore, Maryland. This is a clinical trial in research focusing on the heart of Duchenne Muscular Dystrophy patients. This is not a treatment, it is research. Dake chose to participate in hopes for himself and for those who unfortunately follow behind him.

I will also share a little into our lives. Dake wants his story told....

The good, the bad and the ugly......

For more information on the research at Johns Hopkins on Duchenne Muscular Dystrophy scroll to bottom of the blog.

Sunday, June 19, 2011


Made it back home and it is so good to be here....I had a marvelous time and meet some wonderful people..
Artist maybe eccentric but there is such diversity in this quirky population. This aspect of artists is what I love and definitely experienced this weekend along with some vast knowledge to apply in my own studio.

     I talked to David and wished him a Happy Father's Day from the road.  We talked  awhile and it definitely helped time pass. He caught me up on the details of the weekend. David said Dake and Perry did not go to the movies last night but they did go to eat. He said Dake has not sleep well the last few nights and he thought it was catching up with him.  He said they ate and watched T.V, for awhile. David and Gracey did go out to eat and then they went to the movie. They enjoyed both. Gracey enjoyed spending time with her daddy.

I got home in time to run over to my daddy's house for a quick hug ,visit and to wish him a Happy Father's Day in person. It was nice even if it was just for a few minutes. I am so fortunate to have him just across the street now.

David said Dake did not wake up feeling well this morning.  David teaches Gracey's class so he told him he would let him sleep until Sunday School start but he really need to go teach.  Dake still did not feel well and so David got him up and moving and then he and Gracey went to class. 

     I got in around sevenish and Dake still seems tired.  Hopeful he will sleep better tonight.

David told me Jaimee Abernathy came by on Friday night and brought us a donation to help with Dake's travel. Thanks Jamiee we truly appreciate it and will be able to use it on the trip in July. I know you did not want public recognition but we wanted to thank you. Thanks for your support and kindness.

We are thankful to all of you who support us with encouraging words, donations, but especially with prayers. Without your prayers we wouldn't be able to make it out the door.  Having God on our side has been shown to us  over and over through all of your kindness and support. Thank you.

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