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Welcome to Dake's Blog

This blog is designed to give you updates on Dake as he enters his journey to Johns Hopkins/Kennedy Krieger Institue Center in Baltimore, Maryland. This is a clinical trial in research focusing on the heart of Duchenne Muscular Dystrophy patients. This is not a treatment, it is research. Dake chose to participate in hopes for himself and for those who unfortunately follow behind him.

I will also share a little into our lives. Dake wants his story told....

The good, the bad and the ugly......

For more information on the research at Johns Hopkins on Duchenne Muscular Dystrophy scroll to bottom of the blog.

Wednesday, June 29, 2011

An Adventure....Maybe?

   This weekend we are headed to the mountains for an adventure....well maybe.  We are planning to take Dake tubing or rafting.  Dake is not real sure he is up for this after thinking about it. He has no core strength and this makes him nervous.  So I recruited lots of friends and muscles. Phillip and Evan Webster and possibly Perry Scott may go and help with the adventure at hand. Dake thinks rafting will be easier on him because he can have someone beside him on both sides and in front and back of him. I, on the other hand think rafting will be rougher. So when we get there we will explore both avenues....and may decide to do something totally different.
   We are planning on staying at our Aunt Skipper cottage in the Smokies.  When she passed away my Uncle Al inherited it and he shares it will the whole is a wonderful place and Dake can get around great. We do not have to anticipate any bobbles in our accommodations when we go....that is worth so much....especially if you have these obstacles when traveling.....Thanks so much Uncle Al.

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