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Welcome to Dake's Blog

This blog is designed to give you updates on Dake as he enters his journey to Johns Hopkins/Kennedy Krieger Institue Center in Baltimore, Maryland. This is a clinical trial in research focusing on the heart of Duchenne Muscular Dystrophy patients. This is not a treatment, it is research. Dake chose to participate in hopes for himself and for those who unfortunately follow behind him.



I will also share a little into our lives. Dake wants his story told....



The good, the bad and the ugly......

For more information on the research at Johns Hopkins on Duchenne Muscular Dystrophy scroll to bottom of the blog.



Sunday, June 5, 2011

Forgot to Tell Dake

    Seems I told everyone about the change of dates for Baltimore except Dake. lolI need to work on my communication.  Sorry Daker....of course it could have been his selective hearing....but we will not go there.

The art show is over and now I can breath. The numbers at the art show were low this year but made some great contacts and saw an old (not old in age but friend from years ago) friend and loved the place and managed to sale a few. David picked up Gracey from camp on Friday.  He then brought her to the Factory in Franklin at the art show. She saw me from about 50 yards out and ran and jumped in my arms like she was 2 years old.....stuff like that just does your heart good. Priceless!
    Now we are ready for Nathan's (my brother's son) wedding. He is getting married in Savannah this weekend. We are all so excited for him and Chelsea.  She is adorable and I fell in love with her when I first met her when they were in high school. They both just graduated this year from college.  Dake is going to be a groomsman.  He is really excited and been planning his hair since Nathan asked him.  We are all excited because we are going to see some family we have not been able to see in a long time.....especially my two niece. They are so very special and we have not seen them or visited with them in a while.  We are planning on picking  Lyndsey up on the way in Birmingham at the airport. We will have her just to ourselves a few hours and then we will share her when we get there.  We will get in on Thursday and get Dake fitted for his tux.....this will be interesting to say the least....hopefully the measurements sent will be close....if not we will resort to the good ole' duct tape.   (Has been used in the past.  You have to be like a "Macguyver" of sorts
  when it comes to living with the handicap.....but we "gitt'r done!) In high school, Dake and his date wore duct tape clothes to prom.... it took about 56 hours in all to complete the suit and gown....they were cute. Everything is duct tape, suit, shoes, his flowers and her flowers.....everything but the undies! 

     Dake's side is not hurting anymore...Yay!
Summer is already a whirlwind.....
  
Gracey took this picture of Dake today!

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