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Welcome to Dake's Blog

This blog is designed to give you updates on Dake as he enters his journey to Johns Hopkins/Kennedy Krieger Institue Center in Baltimore, Maryland. This is a clinical trial in research focusing on the heart of Duchenne Muscular Dystrophy patients. This is not a treatment, it is research. Dake chose to participate in hopes for himself and for those who unfortunately follow behind him.



I will also share a little into our lives. Dake wants his story told....



The good, the bad and the ugly......

For more information on the research at Johns Hopkins on Duchenne Muscular Dystrophy scroll to bottom of the blog.



Tuesday, June 7, 2011

Got the Next Reservations

We got the reservations all set for the trip back to Baltimore on July 13th and 14th.  I still have to set up the shuttle reservations. After the last experience, I am checking into other companies for shuttles. I will make those reservations after doing more homework. We are staying in a different hotel this time. We were able to find a package deal at a better price.

    We have new neighbors after being neighborless for about 2 years. The couple is from Hawaii and seem friendly.  Dake went outside today and went over to say, "Hi".  He enjoyed a few minutes of getting to know them. 

    Trying to get the last minute details ready for our trip to Savannah.  We are getting excited for Nathan's and Chelsea's wedding and being with our family. My brother has rented beach houses on Tybee Island for us all to be together.  My brother and my sister-in-law are always good about finding places for Dake to be accessible. We are going to take our portable ramps because we will have a few steps to conquer.
   Having a handicapped family member effects more than the immediate family it effects all family.  We have been so blessed to have a wonderful family who tries to make extra efforts to make things comfortable for Dake and us.  We are so thankful.

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