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Welcome to Dake's Blog

This blog is designed to give you updates on Dake as he enters his journey to Johns Hopkins/Kennedy Krieger Institue Center in Baltimore, Maryland. This is a clinical trial in research focusing on the heart of Duchenne Muscular Dystrophy patients. This is not a treatment, it is research. Dake chose to participate in hopes for himself and for those who unfortunately follow behind him.

I will also share a little into our lives. Dake wants his story told....

The good, the bad and the ugly......

For more information on the research at Johns Hopkins on Duchenne Muscular Dystrophy scroll to bottom of the blog.

Thursday, June 23, 2011

Dake and his new look! SEXY????

  There are disadvantages of having a little sister who has a little mischievousness in her.  The disadvantages are further complicated especially if you can't move your arms.
   Dake, Gracey and I were shopping this afternoon.  Dake and Gracey were following behind me as I was concentrating on the item in hand. I heard Gracey just cracked up laughing out loud....Then I heard Dake say a firm but alittle desperate, "Gracey!" Gracey had tucked the bottom of Dake's t-shirt thru the neck of his shirt like a girl would do to show off her tummy and upper dept. When I turned around I got so tickled but did quickly get to his rescue.

A  special thank you to Sandra Letson for her generous donation to help Dake and his research journey. We appreciate your kindness Sandra so much,

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