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Welcome to Dake's Blog

This blog is designed to give you updates on Dake as he enters his journey to Johns Hopkins/Kennedy Krieger Institue Center in Baltimore, Maryland. This is a clinical trial in research focusing on the heart of Duchenne Muscular Dystrophy patients. This is not a treatment, it is research. Dake chose to participate in hopes for himself and for those who unfortunately follow behind him.

I will also share a little into our lives. Dake wants his story told....

The good, the bad and the ugly......

For more information on the research at Johns Hopkins on Duchenne Muscular Dystrophy scroll to bottom of the blog.

Thursday, June 16, 2011

All by Myself

   I am in Atlanta for an art workshop. It was a birthday present from January.  I am so excited about learning new and wonderful things. I left today and Dake and Gracey headed across the street to their grandparents until David got home.

  It is so unbelieveably quiet here..(I already miss them ...isn't that pitiful)..I just called home and told them I was here and in the hotel.

 Next door to the hotel is a beyond amazing art store. It is like a 'Disney World' for artist.  I only spent an hour and half in there this afternoon.

The workshop will start early tomorrow so the quietness won't seem so bad then.

I talked to Gracey tonight and she said Dake and she were making a habitat (I don't think I knew that word when I was 10.)  for lightning bugs. She is going to use them as a night light tonight.  She and Dake always have fun projects together.

David said Gracey fixed supper tonight.  She fixed hotdogs.  To build her confidence in cooking he ate FIVE! (she alt to feel pretty confident...ugh.)

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