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Welcome to Dake's Blog

This blog is designed to give you updates on Dake as he enters his journey to Johns Hopkins/Kennedy Krieger Institue Center in Baltimore, Maryland. This is a clinical trial in research focusing on the heart of Duchenne Muscular Dystrophy patients. This is not a treatment, it is research. Dake chose to participate in hopes for himself and for those who unfortunately follow behind him.

I will also share a little into our lives. Dake wants his story told....

The good, the bad and the ugly......

For more information on the research at Johns Hopkins on Duchenne Muscular Dystrophy scroll to bottom of the blog.

Tuesday, August 30, 2011

Compliments ONLY!

    Great news, Pam gets to return home from hospital and for mending along with girls. Hoping they will be as good as new soon....Thank you God.  The Schrimshers and Besheres have had way too many bumps this year with the tornado and this wreck. We are continuing to pray for their full recovery. 
 When I was five I had a wreck with my grandfather who lived in Memphis. (We lived in Columbia, Tn.) I remember he was so scared when he saw me because I was covered in blood. He got to ride in the ambulance with me and he told the ambulance driver not to put on the siren because he thought it would scare me.  It took a long time to feel comfortable to ride in a car again.  My head got hit hard and I had a bloody nose. I had a concussion and they were told to not let me sleep and bring me back to the hospital if I had any vomiting with blood. I  remember having a bad headache and did not want to eat but my grandmother gave me HI-C.  It tasted so good. Later I started vomiting and my grandparents thought I had thrown up blood but it was just the HI-C.  
  David's blood pressure is still elevated but better than it was. Within minutes of arriving home he was pulled over and given two  traffic tickets.  One for failing to use his turn signal and the other for light not working properly....This is not the best thing for someone with blood pressure issues. We could truly say lousy timing...
The doctor's office called and had to postpone David's appt. for Wednesday to Thursday. This is one time I do not want to be patient.
Luckily Phillip is visiting with us this week and he is taking the sleep issue for David right now. Phillip is amazing how he seems to show up in our life when we really need some help. We are not only thankful for his friendship with Dake but with the whole family....He is like family. Thanks Phillip.
Tomorrow Mom (me) has decided we can only say positive and loving things to each other. I noticed on Dake's facebook he had already paid a nice compliment to his red headed sister...  I was so proud of him getting an early start...later I discovered she had written it instead of him. 

1 comment:

  1. Those sneaky kids!! :) Also, glad to know that your friends are doing well. And, we'll be praying for y'all this week!