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Welcome to Dake's Blog

This blog is designed to give you updates on Dake as he enters his journey to Johns Hopkins/Kennedy Krieger Institue Center in Baltimore, Maryland. This is a clinical trial in research focusing on the heart of Duchenne Muscular Dystrophy patients. This is not a treatment, it is research. Dake chose to participate in hopes for himself and for those who unfortunately follow behind him.

I will also share a little into our lives. Dake wants his story told....

The good, the bad and the ugly......

For more information on the research at Johns Hopkins on Duchenne Muscular Dystrophy scroll to bottom of the blog.

Wednesday, August 10, 2011

Is He Or Is He NOT? That is the Question...

 Some have asked and I have continually asked myself...."Do you think Dake is actually on the drug or just the placebo?"  Aug. 13th will mark a month of starting the medication.  I wish the answer was so astronomically no one had to ask because he would do something like walk or do jumping jacks to answer that question. But unfortunately it does not work that way. 
....But as I slip back to reality....honestly some days I think definitely he is on the drug and others I am certain he is not. He kinda feels the same way. Even Gracey was convinced he had lifted his drink higher than usual the other day....but Dake did not think so.... So I quess we are all on constant watch.  That wonderful word of patience is in play....again...Isaiah 40:31
but they who wait for the LORD
 shall renew their strength;
they shall mount up with wings like eagles;
they shall run and not be weary;
 they shall walk and not faint.

I love visualizing riding on the wings of eagles in flight.... and Dake being that free.

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