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Welcome to Dake's Blog

This blog is designed to give you updates on Dake as he enters his journey to Johns Hopkins/Kennedy Krieger Institue Center in Baltimore, Maryland. This is a clinical trial in research focusing on the heart of Duchenne Muscular Dystrophy patients. This is not a treatment, it is research. Dake chose to participate in hopes for himself and for those who unfortunately follow behind him.

I will also share a little into our lives. Dake wants his story told....

The good, the bad and the ugly......

For more information on the research at Johns Hopkins on Duchenne Muscular Dystrophy scroll to bottom of the blog.

Sunday, August 7, 2011

Corn, Corn, Corn......

       Today we ran it close to starting time to get to church this morning. We have all known of people who think they "own" their seat or place on a certain pew at church. It is not like that actually with us but it may appear like that to some. We  have to find an end pew or seat to house our family and Dake on then end. We need an end seat next to Dake not only because it is nice to sit together but because he needs assistance with the communion and other things sometimes during church. This morning we were running it close to the wire and I begin to get a little panicky worrying we will not get a place where we can sit next to Dake. Luckily, I think we got the last spot and got settled in before service began. It so nice to have all my kids and Phillip with our family today. I gave me the warm know one of those small things that just make you feel good.

     David's mom called and said the storm had blown one crop of corn down and we need to come as soon as we can to help with getting all this corn up. We left after lunch and headed to Tennessee to shuck and fix the corn. They had done enough already for David's mom and his sister and family. They had given away a bunch and were at the desperate point by the time we arrived. David and Phillip helped shucked the corn and Lyndsey, Gracey and I cut the corn off the cob and bagged it for freezing it. Dake started outside with the shuckers and moved inside and ate some of Mimi's hot fudge cake as he watched us cut corn.....his Aunt Bippy served him up right. (Something is not fair about him eating Mimi's hot fudge cake as we were working.......but no worries we did get ours when we finished.)
    Lyndsey grabbed her knife bag and we headed to Mimi's kitchen.  When we all got in our place Lyndsey shared her knives with us for cutting the corn off the cob. She has a small fortune in her knives.  I cut the corn off the first cob and I was in love. It was like butter sliding down the cob. Pretty awesome. As I was so proud of my progress I looked over and saw Lyndsey did about four cobs to my one. As my corn ego deflated I stopped to watch and WOW.   Watching her was like going to the Japanese Restaurant and watching the chef chop up your dinner for you but in corn form ....if you can visualize what I mean. She was very entertaining.  Dake actually stopped eating a moment to watch too.
    We finally finished up with 25 beautiful quart bags of golden sweet corn. Mimi was pooped and relieved....... well until the next crop comes in.....

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