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Welcome to Dake's Blog

This blog is designed to give you updates on Dake as he enters his journey to Johns Hopkins/Kennedy Krieger Institue Center in Baltimore, Maryland. This is a clinical trial in research focusing on the heart of Duchenne Muscular Dystrophy patients. This is not a treatment, it is research. Dake chose to participate in hopes for himself and for those who unfortunately follow behind him.

I will also share a little into our lives. Dake wants his story told....

The good, the bad and the ugly......

For more information on the research at Johns Hopkins on Duchenne Muscular Dystrophy scroll to bottom of the blog.

Wednesday, August 17, 2011


      Today Dake had his pulmonary visit.  The doctor is very happy and impressed with Dake's pulmonary function from his evaluation today.  He is waiting on the evaluations done at Johns Hopkins so he can compare the records with his but he is very please with what he saw with Dake's lungs today.  And we will celebrate this moment. YAY!

     Gracey's first few days of school has gone well so far. She, for the most part leaves me in the morning smiling and gets back in the car smiling. So far the worst part of her day is the taste of her lunch...This morning I had a flash forward with her attitude. She could not get her hair to her liking and it was not a happy moment.  I finally forced her in the car because of time and she at least came to a satisfaction with her locks before arriving to school. She did give me a sweet smile before hopping out the car. 
       My experience tells me I will have plenty more mornings like this one echoing in my future. We are coming into that dreaded "stage" of adolescence. So we will just better hang on for the ride. This too will pass.

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