Total Pageviews

Welcome to Dake's Blog

This blog is designed to give you updates on Dake as he enters his journey to Johns Hopkins/Kennedy Krieger Institue Center in Baltimore, Maryland. This is a clinical trial in research focusing on the heart of Duchenne Muscular Dystrophy patients. This is not a treatment, it is research. Dake chose to participate in hopes for himself and for those who unfortunately follow behind him.

I will also share a little into our lives. Dake wants his story told....

The good, the bad and the ugly......

For more information on the research at Johns Hopkins on Duchenne Muscular Dystrophy scroll to bottom of the blog.

Sunday, January 22, 2012

Fly to Baltimore ....EARLY Monday

We will leave Athens early to travel to Baltimore, Johns Hopkins, on Monday morning. Please pray the travel will be comfortable for Dake and with lots of ease for David especially. Dake will be checked for his six months checkup. They will repeat the dreaded MRI (it took two hours last time) and several other test. This is the time in the trial that everyone will definitely be on the actually drug and not a placebo.  (Dake and I believe he is already on the actually drug but that is just our belief at this point).  Praying for awesome results on all his test and encouragement to continue forward with this drug.. Pray some of his daily living skills return with the hope of this drug..

No comments:

Post a Comment