Total Pageviews

Welcome to Dake's Blog

This blog is designed to give you updates on Dake as he enters his journey to Johns Hopkins/Kennedy Krieger Institue Center in Baltimore, Maryland. This is a clinical trial in research focusing on the heart of Duchenne Muscular Dystrophy patients. This is not a treatment, it is research. Dake chose to participate in hopes for himself and for those who unfortunately follow behind him.

I will also share a little into our lives. Dake wants his story told....

The good, the bad and the ugly......

For more information on the research at Johns Hopkins on Duchenne Muscular Dystrophy scroll to bottom of the blog.

Tuesday, January 17, 2012

Coming up on the 23rd of January ....SIX MONTHS.

Dake will be returning to Baltimore MD at Johns Hopkins for his six months check up. This is a check up on being on the sildenafil or placebo.  At this time all test will be repeated and then he will definitely be placed on the medication. No placebos will be administrated after six months..ALL patients for sure get the medicine. Dake and I both have a gut feeling he has been on the medicine all along but we are guessing at this point.
PLEASE pray for this trip and the results will be POSITIVE for Duchenne Muscular Dystrophy patients.  Please pray for David and I as we wait with Dake and deal with the details.  And please pray for Lyndsey and Gracey while they carry on with daily life and wait for the information to filter down to them. Thanks so much for your support.

No comments:

Post a Comment