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Welcome to Dake's Blog

This blog is designed to give you updates on Dake as he enters his journey to Johns Hopkins/Kennedy Krieger Institue Center in Baltimore, Maryland. This is a clinical trial in research focusing on the heart of Duchenne Muscular Dystrophy patients. This is not a treatment, it is research. Dake chose to participate in hopes for himself and for those who unfortunately follow behind him.

I will also share a little into our lives. Dake wants his story told....

The good, the bad and the ugly......

For more information on the research at Johns Hopkins on Duchenne Muscular Dystrophy scroll to bottom of the blog.

Wednesday, January 25, 2012

Day of Soreness and Rest

Dake is pretty sore from all the attempts of draining his blood. The ladies who help with getting him up and dressed had to be extra careful with him this morning. He was able to go back to bed this morning and that definitely made him happy. After the travels and events rest was truly needed. He seems rested after the extra sleep and seems to be in good spirits despite the soreness.  All is good.

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