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Welcome to Dake's Blog

This blog is designed to give you updates on Dake as he enters his journey to Johns Hopkins/Kennedy Krieger Institue Center in Baltimore, Maryland. This is a clinical trial in research focusing on the heart of Duchenne Muscular Dystrophy patients. This is not a treatment, it is research. Dake chose to participate in hopes for himself and for those who unfortunately follow behind him.

I will also share a little into our lives. Dake wants his story told....

The good, the bad and the ugly......

For more information on the research at Johns Hopkins on Duchenne Muscular Dystrophy scroll to bottom of the blog.

Tuesday, January 24, 2012

Does Dake Really Have ANY Blood in his Body?

    Early this morning Dake woke up to a group of professionals all with needles.  The cardiologist triedto draw blood on the inside of his wrist but no luctk. So he decided to go ahead and try the femur vein/artery in upper leg.   No luck! The doctor dug but still no luck! Dake just said "Sweet Nibbets!"....Which honestly I could of thought of different words.
     The doctor had Dake drink water most of the day.  Dake said his eyeballs were floating......The cardiologist returned in the afternoon.  He tried first in his arm and hand.  No luck.....moved to his feet and luck....He decided to return to his femur artery/vein....Dake is not at all thrilled at this decision.  David had to help hold and lift Dake and I was on the other side.  David usually leaves the room on purpose because when anyone in his family has to have blood drawn or taken David usually lands up becoming the patient.  I made him look the other direction.....his face still turned blood red..
.Finally blood has been found and drawn.  SIGH!

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