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Welcome to Dake's Blog

This blog is designed to give you updates on Dake as he enters his journey to Johns Hopkins/Kennedy Krieger Institue Center in Baltimore, Maryland. This is a clinical trial in research focusing on the heart of Duchenne Muscular Dystrophy patients. This is not a treatment, it is research. Dake chose to participate in hopes for himself and for those who unfortunately follow behind him.

I will also share a little into our lives. Dake wants his story told....

The good, the bad and the ugly......

For more information on the research at Johns Hopkins on Duchenne Muscular Dystrophy scroll to bottom of the blog.

Monday, September 19, 2011


        Lyndsey is back home and she has made it her mission to ”whoop” us in shape. She is showing Dake how he can be more independent in little ways. She told him when he is at a restaurant to have the kitchen cut up his food so we do not have too. She told him it makes him more independent and he does not have to rely on anyone to stop eating to help him. 
Yesterday we went to a local Mexican restaurant and Dake requested a smaller glass so it will be easier for him to drink. The drinks came out and he has an ex large glass like the rest of us.  I suggested he ask for a “to go” cup.  So he gets his “to go” cup and feels good about it. Lyndsey reminds him to ask the waitress to have his chimichanga cut into bite size pieces. So he did. The waitress brings Dake’s his food and it’s a child’s hotdog.  The look on Dake’s face still makes me laugh today. We are all trying to remain calm and nonchalant  but in reality we were about to blow milk out our noses. Lyndsey comes to his rescue and speaks a little Spanish to her and she finally comprehends.  She then returns the correct order and cut up into bite size pieces.
                               David now calls Dake, “Hotdog”.

1 comment:

  1. i love yall! you almost made me blow coffee out of my nose!