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Welcome to Dake's Blog

This blog is designed to give you updates on Dake as he enters his journey to Johns Hopkins/Kennedy Krieger Institue Center in Baltimore, Maryland. This is a clinical trial in research focusing on the heart of Duchenne Muscular Dystrophy patients. This is not a treatment, it is research. Dake chose to participate in hopes for himself and for those who unfortunately follow behind him.

I will also share a little into our lives. Dake wants his story told....

The good, the bad and the ugly......

For more information on the research at Johns Hopkins on Duchenne Muscular Dystrophy scroll to bottom of the blog.

Thursday, September 8, 2011

Planning Ahead

Just booked the next flight to Baltimore which will mark the three month mark of when Dake started the study. This next trip will be in October.  We will only have to be at Johns Hopkins for about an hour so we are going to fly up and return the same day. I hope this does not completely exhaust him. Phillip is think about going with us on this trip but it depends if he has a new job that will interfere or not. His help and company will be truly appreciated.
Nothing significant has been seen or felt by Dake so far.
We will continue to pray for what is best for him and God's guidance.
 Of course. I would love that miracle.

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