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Welcome to Dake's Blog

This blog is designed to give you updates on Dake as he enters his journey to Johns Hopkins/Kennedy Krieger Institue Center in Baltimore, Maryland. This is a clinical trial in research focusing on the heart of Duchenne Muscular Dystrophy patients. This is not a treatment, it is research. Dake chose to participate in hopes for himself and for those who unfortunately follow behind him.

I will also share a little into our lives. Dake wants his story told....

The good, the bad and the ugly......

For more information on the research at Johns Hopkins on Duchenne Muscular Dystrophy scroll to bottom of the blog.

Wednesday, July 13, 2011

Picture at Johns Hopkins July 13, 2011

  Dr. Leung performing a pulmonary function test on Dake....
.Looks like Dake
might have smelled something

 Dake is with Dr. Genila Bibat, the research coordinator  for the research team.

 Rodney Cobb doing an ultra sound
 on the artery on Dake's arm.
 Hardest part is Dake staying
 completely still for five minutes...
this was not at all invasive.....Yay!
 Dake says this is getting a waxing done of his belly..
He told Rodney to be gentle.  "RIP"

Waiting....lots and lots of waiting.....

 At least he gets to wait while resting this time...".Nighty Night Daker!"

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