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Welcome to Dake's Blog

This blog is designed to give you updates on Dake as he enters his journey to Johns Hopkins/Kennedy Krieger Institue Center in Baltimore, Maryland. This is a clinical trial in research focusing on the heart of Duchenne Muscular Dystrophy patients. This is not a treatment, it is research. Dake chose to participate in hopes for himself and for those who unfortunately follow behind him.

I will also share a little into our lives. Dake wants his story told....

The good, the bad and the ugly......

For more information on the research at Johns Hopkins on Duchenne Muscular Dystrophy scroll to bottom of the blog.

Monday, July 11, 2011

Last Minute Details for Trip To Baltimore

Trying to finish the last minute kinda stuff. I did triple check the shuttle because of the problems last time. Dake does not seem nervous but does not look forward to the physical trip.  He dreads the ups and downs of traveling in a wheelchair.  But some things are not avoidable. So we leave, Tuesday, July 12 in the evening out of Huntsville. Gracey is staying with grandparents again and my nephew will be there too so she will have plenty of "picking on" to do....poor Nick!  Nick has agreed to teach Gracey his soccer skills while we are gone. So they will be busy.

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