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Welcome to Dake's Blog

This blog is designed to give you updates on Dake as he enters his journey to Johns Hopkins/Kennedy Krieger Institue Center in Baltimore, Maryland. This is a clinical trial in research focusing on the heart of Duchenne Muscular Dystrophy patients. This is not a treatment, it is research. Dake chose to participate in hopes for himself and for those who unfortunately follow behind him.

I will also share a little into our lives. Dake wants his story told....

The good, the bad and the ugly......

For more information on the research at Johns Hopkins on Duchenne Muscular Dystrophy scroll to bottom of the blog.

Saturday, July 9, 2011

A Day at the Creek

Today we meet family in Minor Hill at Mt Zion at the creek.  It was an absolute perfect day for a picnic and playing in the creek. This spot on earth is such a unique place. It is pure and simple. Today, in the age of technology, it is refreshing to see nature entertain young and old in it's pure simplicity.  (by the way, no cell phone service in this area)

Every year we frequent this same place out in the "boonies" and every year we get lost getting there. It is so far out that the pavement turns to gravel and soon turns to dirt before arrival. Some streets have names others don't. Every year I vow to take a can of spray paint to mark the way. This year there were pink balloons marking our path. We assumed that someone in our group had a similar idea of marking the way and graciously helped us.  When we finally arrived we discovered a little girl was celebrating her birthday at the pavillon by the old church. We are just glad it lead us to the right place.  This place is so tucked in the woods that not only do we get lost each year going to the creek we seem to get lost coming back out....

The rain caused the creek to swell and brought more fun for the kids (old and young) as they played in the natural water slide.

We all had an amazing time.  I have to admit with all the fun and sun my mind occasionally drifted to the events ahead for next week. We leave on the 12th of July to return to Baltimore for Dake to start his treatment. I found my mind wandering in apprehension of the week to come.  As quick as my stomach would do a flip flop from the thoughts of Baltimore, I would get splashed from giggling kids back to reality.  It was a good day.

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