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Welcome to Dake's Blog

This blog is designed to give you updates on Dake as he enters his journey to Johns Hopkins/Kennedy Krieger Institue Center in Baltimore, Maryland. This is a clinical trial in research focusing on the heart of Duchenne Muscular Dystrophy patients. This is not a treatment, it is research. Dake chose to participate in hopes for himself and for those who unfortunately follow behind him.

I will also share a little into our lives. Dake wants his story told....

The good, the bad and the ugly......

For more information on the research at Johns Hopkins on Duchenne Muscular Dystrophy scroll to bottom of the blog.

Tuesday, May 31, 2011

Dake Returns to Baltimore in June

     Dake is feeling much better. He slept until 12:30 p.m. today. He is still having pain in his side but it is better too. I think that the side  pain and the passing out were to seperate events. I did call the local cardiologist and they made a report of today's events and said to call if they happen again. At this point we do not know what caused today's episodes.
     When the dust settled and Dake was resting, the phone rang.  It was the doctor from Johns Hopkins.  They are ready for Dake to come and start the administration of the heart drug or placebo.  The new dates to return to Baltimore is June 20th and June 21st.  So we are in the act of starting all over again and get the preparations ready on this trip. The return trip came a little earlier than we anticipated but we are ready. Please pray for our return trip and to find the cause of today's events with Dake. I do not know rather I want to pray Dake gets the real drug or the God this one is for you! (after six months everyone will get the real drug)

I have an artshow I am trying to get ready for in between all these "episodes".  It is this weekend at the Factory in Franklin, Tennessee.  The show is called ARTFUSION and the dates are June 3rd and 4th.  I am going into this show not completely prepared.  The tornado relief and Dake's research slowed my efforts down quite a bit.  But I would much rather be little less in the show because I praise God for the time spent this last month with the tornado victims and the opportunities that have opened up for Dake! Yay God! and Thank you!

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