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Welcome to Dake's Blog

This blog is designed to give you updates on Dake as he enters his journey to Johns Hopkins/Kennedy Krieger Institue Center in Baltimore, Maryland. This is a clinical trial in research focusing on the heart of Duchenne Muscular Dystrophy patients. This is not a treatment, it is research. Dake chose to participate in hopes for himself and for those who unfortunately follow behind him.



I will also share a little into our lives. Dake wants his story told....



The good, the bad and the ugly......

For more information on the research at Johns Hopkins on Duchenne Muscular Dystrophy scroll to bottom of the blog.



Wednesday, May 18, 2011

Getting Ready

Finishing last minute details with the upcoming trip. Daker is calm and making silly jokes about everything as usual. I asked him if he was nervous...He said, "No it's not like they are going to cut off my leg or something."

The anixety for me is starting to come....been practicing my breathing techinques. I talked with JH this morning and they have worked out the problem with the shuttle. So all is good. Now I must breath.

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