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Welcome to Dake's Blog

This blog is designed to give you updates on Dake as he enters his journey to Johns Hopkins/Kennedy Krieger Institue Center in Baltimore, Maryland. This is a clinical trial in research focusing on the heart of Duchenne Muscular Dystrophy patients. This is not a treatment, it is research. Dake chose to participate in hopes for himself and for those who unfortunately follow behind him.



I will also share a little into our lives. Dake wants his story told....



The good, the bad and the ugly......

For more information on the research at Johns Hopkins on Duchenne Muscular Dystrophy scroll to bottom of the blog.



Tuesday, May 17, 2011

The Journey Begins

Lots of preparation goes into traveling with one in a wheelchair. Travel is always a challenge no matter how well one plans. So hopefully we have covered all our bases and are ready to go.



Sunday, May 22, 2011, Dake, David and Lynn will fly into Baltimore Maryland to kick start Dake's new adventure. This trip will involve a neurological evaluation, blood, and urine collection. We start this process at 9am at the Kennedy Krieger Institute on Monday, May 23, 2011. Upon completion we will report to the Kennedy Krieger Institute for a Cardiac MRI at 1pm. This procedure will take approximately 2 hours.
Please remember us all in your prayers. Lyndsey was hoping to meet us in Baltimore but an unexpected interview thru a loop into our plans...This was an exciting loop but nonetheless she will not make this trip. Gracey will be staying with her grandparents.

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