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Welcome to Dake's Blog

This blog is designed to give you updates on Dake as he enters his journey to Johns Hopkins/Kennedy Krieger Institue Center in Baltimore, Maryland. This is a clinical trial in research focusing on the heart of Duchenne Muscular Dystrophy patients. This is not a treatment, it is research. Dake chose to participate in hopes for himself and for those who unfortunately follow behind him.



I will also share a little into our lives. Dake wants his story told....



The good, the bad and the ugly......

For more information on the research at Johns Hopkins on Duchenne Muscular Dystrophy scroll to bottom of the blog.



Tuesday, May 24, 2011

Heading Home

We are heading home. I am sure Dake is ready for his own bed. Now we have to wait a week and hear back from Kennedy Krieger to make sure Dake qualifies for the study under their test.

We cannot even begin to express the gratitude for all the wonderful encouragement. It has helped us so much....off to the airport.....

Coming home Gracey!!!!
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