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Welcome to Dake's Blog

This blog is designed to give you updates on Dake as he enters his journey to Johns Hopkins/Kennedy Krieger Institue Center in Baltimore, Maryland. This is a clinical trial in research focusing on the heart of Duchenne Muscular Dystrophy patients. This is not a treatment, it is research. Dake chose to participate in hopes for himself and for those who unfortunately follow behind him.



I will also share a little into our lives. Dake wants his story told....



The good, the bad and the ugly......

For more information on the research at Johns Hopkins on Duchenne Muscular Dystrophy scroll to bottom of the blog.



Sunday, May 22, 2011

Arrived in Baltimore, MD

We arrived in Baltimore safely and now at a McDonald's waiting for our room at the hotel to be ready. Traveling went well except for one piece on Dake's chair is a little out of whack....we need a metric allen wrench. Hopefully we can locate one. But all in all it is good....
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