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Welcome to Dake's Blog

This blog is designed to give you updates on Dake as he enters his journey to Johns Hopkins/Kennedy Krieger Institue Center in Baltimore, Maryland. This is a clinical trial in research focusing on the heart of Duchenne Muscular Dystrophy patients. This is not a treatment, it is research. Dake chose to participate in hopes for himself and for those who unfortunately follow behind him.

I will also share a little into our lives. Dake wants his story told....

The good, the bad and the ugly......

For more information on the research at Johns Hopkins on Duchenne Muscular Dystrophy scroll to bottom of the blog.

Thursday, July 19, 2012

Arrived in Baltimore

        We arrived safely in Baltimore this morning around 9 a.m. central time. I knew it would be hot in Houston when we visited, and I knew it was hot in Alabama but I never thought Baltimore could be as hot. Most of the time we have spent here has been during the cold season.  It was 104 degrees yesterday.  It is exhausting.
We got out a little this afternoon but returned early because of the heat. We were all drained. Dake fell asleep and rested a couple of hours. Trying to keep him hydrated is not easy in this heat. He has to hydrate intensely prior to having blood drawn because of the difficulty he has had in the past. We decided to order in for supper and relax this evening getting ready for tomorrow's testing. We are watching, The Three Musketeers with the air conditioner turned to very (icicle) cold.
 (Yes, I know we are spoiled...ahhhhh!)

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