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Welcome to Dake's Blog

This blog is designed to give you updates on Dake as he enters his journey to Johns Hopkins/Kennedy Krieger Institue Center in Baltimore, Maryland. This is a clinical trial in research focusing on the heart of Duchenne Muscular Dystrophy patients. This is not a treatment, it is research. Dake chose to participate in hopes for himself and for those who unfortunately follow behind him.

I will also share a little into our lives. Dake wants his story told....

The good, the bad and the ugly......

For more information on the research at Johns Hopkins on Duchenne Muscular Dystrophy scroll to bottom of the blog.

Monday, July 9, 2012

Needing Something

Something to Do

We have known Dake needs something productive with his time for a while now.   He has tried different things.  Right after high school he wanted to work.  He was a tour guide for Children’s Museum for a year and a half.  Then he decided to go to school for a couple years and had to stop because of fatigue.  He did go to a couple of class with Athens States continuing education.  Dake needs something to do.  He has seen every movie and T.V. show American and British, well, just about.   He is great on his computer but limited physically in his abilities. He can fatigue easily but it is some better for now.   He can move his fingers to do his computer but needs help with raising hands and arms.  This has been a challenge for all of us for such a long time. We have just run out of ideas.  If you have any ideas even if you are not sure, please make a suggestion.

We have prayed and prayed for answers and now we ask you to help us pray.

1 comment:

  1. Have you ever tried geocatching he could control the compass and navigate you through a park while someone else gets the cache from the hiding spot. It could get him out n about plus it's fun