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Welcome to Dake's Blog

This blog is designed to give you updates on Dake as he enters his journey to Johns Hopkins/Kennedy Krieger Institue Center in Baltimore, Maryland. This is a clinical trial in research focusing on the heart of Duchenne Muscular Dystrophy patients. This is not a treatment, it is research. Dake chose to participate in hopes for himself and for those who unfortunately follow behind him.

I will also share a little into our lives. Dake wants his story told....

The good, the bad and the ugly......

For more information on the research at Johns Hopkins on Duchenne Muscular Dystrophy scroll to bottom of the blog.

Thursday, December 15, 2011

Update on Dake

We landed up at the doctor's office much against Dake's will. After a talk with his nurse, the doctor said he really wanted him to come in.
The doctor said without doing more extensive test he could not find anything on the surface wrong with him.  His lungs sound good so that was a relief. He gave him an antibiotic and he wants us to pay close attention to his fever. Right now the fever is still around even with ibuprofen.  He said if it does not break to bring him to the ER.
So now we wait.....
He did finally ate some chicken broth and is drinking some Gatorade.
Today certainly went differently than planned.

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