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Welcome to Dake's Blog

This blog is designed to give you updates on Dake as he enters his journey to Johns Hopkins/Kennedy Krieger Institue Center in Baltimore, Maryland. This is a clinical trial in research focusing on the heart of Duchenne Muscular Dystrophy patients. This is not a treatment, it is research. Dake chose to participate in hopes for himself and for those who unfortunately follow behind him.

I will also share a little into our lives. Dake wants his story told....

The good, the bad and the ugly......

For more information on the research at Johns Hopkins on Duchenne Muscular Dystrophy scroll to bottom of the blog.

Friday, December 2, 2011

Good bye Mr. Hobbs!

      Today my mother, Lyndsey and I attend the funeral for Wayne Hobbs. Wayne was a coach to David in high school football. My high school principal and later became my boss. He was Dake and Lyndsey's high school principal. He was very good to us when Gracey came along and help me make accommodations for her to help me continue working.  He was extremely good to Dake and saw he got what he needed while in school.  He went to bat for me when theschool  superintent and I were butting heads.
      Dake and Lyndsey's senior prom was at the Opryland Hotel.  The kids rode to the prom on charter buses. The buses were not handicap accessible.  So I was going to drive and take Dake and his date in our van. But this meant they were excluded from their friends. Mr. Hobbs arranged for Dake to have a limo and to take him and a few of his friends to follow behind the buses.  It was an awesome memory and  we appreciate all he did for him. 
    At graduation Dake had always work toward walking to get his diploma. But when Dake wasn't able to walk and rolled in to get his diploma Mr. Hobbs hugged him and the crowd gave them a standing ovation that still brings me to tears to think about 8 years later. It was one of those priceless moments.
Our hearts are with his family during this difficult time and pray God wraps his loving arms around them. RIP

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