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Welcome to Dake's Blog

This blog is designed to give you updates on Dake as he enters his journey to Johns Hopkins/Kennedy Krieger Institue Center in Baltimore, Maryland. This is a clinical trial in research focusing on the heart of Duchenne Muscular Dystrophy patients. This is not a treatment, it is research. Dake chose to participate in hopes for himself and for those who unfortunately follow behind him.

I will also share a little into our lives. Dake wants his story told....

The good, the bad and the ugly......

For more information on the research at Johns Hopkins on Duchenne Muscular Dystrophy scroll to bottom of the blog.

Wednesday, December 14, 2011

Returning to the Cardiologist in Huntsville

     Today Dake has his appointment with Dr. Laney (cardiologist) for his regular yearly check up. Last year is when we found had a strong decline in his heart function.  This conclusion kinda caught us off guard because we had no idea the decline wash going on.  Duchenne Muscular Dystrophy will progress and  the heart and the lungs are the last muscles to deteriorate before death. So, as Dake told me as we came out of the cardiologist's office after receiving the discouraging news.."It is, what it is!
    As we enter this day with a prayer and attitude of "It is, what it is!" I hope for a sign the experiment drug is working in our favor.

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