Today Dake has his appointment with Dr. Laney (cardiologist) for his regular yearly check up. Last year is when we found had a strong decline in his heart function. This conclusion kinda caught us off guard because we had no idea the decline wash going on. Duchenne Muscular Dystrophy will progress and the heart and the lungs are the last muscles to deteriorate before death. So, as Dake told me as we came out of the cardiologist's office after receiving the discouraging news.."It is, what it is!
As we enter this day with a prayer and attitude of "It is, what it is!" I hope for a sign the experiment drug is working in our favor.
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