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Welcome to Dake's Blog

This blog is designed to give you updates on Dake as he enters his journey to Johns Hopkins/Kennedy Krieger Institue Center in Baltimore, Maryland. This is a clinical trial in research focusing on the heart of Duchenne Muscular Dystrophy patients. This is not a treatment, it is research. Dake chose to participate in hopes for himself and for those who unfortunately follow behind him.



I will also share a little into our lives. Dake wants his story told....



The good, the bad and the ugly......

For more information on the research at Johns Hopkins on Duchenne Muscular Dystrophy scroll to bottom of the blog.



Wednesday, December 14, 2011

The Results of Today at the Cardiologist in Huntsville

Dake and I returned after a long day at the doctor.  Dake says,"they have waiting rooms to be able to go to another waiting room.".  That about sums it up.
        We went through the test required and waited for the doctor to enter the room.  Dr. Laney came in and said ," Dake, you are holding own and we could possibly say you are alittle better........" Thank you God.WOO HOO! YAY!
   As soon as the doctor left the room Dake said, 'Well, I think I am going to live forever!"
It has been a GOOD day!
 Next hurdle is in January at Johns Hopkins with more intensive and aggressive testing....(Dake is really dreading it.)  Please keep praying.
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