The Heart of Dake: Praying for Pam, Sarah Beth, and Kimberly Besheres

Welcome to Dake's Blog

This blog is designed to give you updates on Dake as he enters his journey to Johns Hopkins/Kennedy Krieger Institue Center in Baltimore, Maryland. This is a clinical trial in research focusing on the heart of Duchenne Muscular Dystrophy patients. This is not a treatment, it is research. Dake chose to participate in hopes for himself and for those who unfortunately follow behind him.

I will also share a little into our lives. Dake wants his story told....

The good, the bad and the ugly......

For more information on the research at Johns Hopkins on Duchenne Muscular Dystrophy scroll to bottom of the blog.

Monday, August 29, 2011

Praying for Pam, Sarah Beth, and Kimberly Besheres

We have heard Pam and Sarah Beth and Kimberly have been in a car accident. They have been taken to Huntsville Hospital...Please pray for this precious family.

Please remember David too...he is still struggling with high blood pressure....

Recent update from Bill Perkins: Update: Kimberly has been released. Sarah Beth bruised collar bone. Pam likely has a small fracture of sternum (seat-belt) still waiting on x-rays of right leg. Doc said "she is okay". Neck collar is off, she can get up if she can/wants to. Praise God!

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What is Duchenne Muscular Dystrophy

Duchenne Muscular Dystrophy is a common inherited disorder worldwide. It effects mostly only boys. Dake was diagnosed at age six. Today the boys are usually diagnosed between 3 and 5 years of age. The mother carries the gene which produces Duchenne in her sons. In Dake's case, Lynn does not carry the gene. The doctors and the scientists have determined basically in layman's terms that Dake was the creator of his own disease. He is unusual because he was a spontaneous mutation. Dake rode a bicycle and played soccer like most boys. He walked until he started using a scooter part time at age 11 or 12. He was in a chair full time by the age of 14. The progression of Duchenne first effects the legs and moves upward to the torso, arms and all voluntary muscles are involve including those responsible for respiration and the heart. The weakness of the heart and respiratory muscles makes this a fatal disease. Most patients died before their 20th birthday. In April of 2011, Dake turned 27.

The Heart of Dake

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Welcome to Dake's Blog

Monday, August 29, 2011

Praying for Pam, Sarah Beth, and Kimberly Besheres

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WHAT WILL HAPPEN IF YOU JOIN THIS STUDY?

QUESTIONS ABOUT THE STUDY? CONTACT NUMBERS.

HOW MANY PEOPLE WILL BE IN THIS STUDY?

ARE THERE BENEFITS TO BEING IN THE STUDY?