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Welcome to Dake's Blog

This blog is designed to give you updates on Dake as he enters his journey to Johns Hopkins/Kennedy Krieger Institue Center in Baltimore, Maryland. This is a clinical trial in research focusing on the heart of Duchenne Muscular Dystrophy patients. This is not a treatment, it is research. Dake chose to participate in hopes for himself and for those who unfortunately follow behind him.



I will also share a little into our lives. Dake wants his story told....



The good, the bad and the ugly......

For more information on the research at Johns Hopkins on Duchenne Muscular Dystrophy scroll to bottom of the blog.



Tuesday, August 16, 2011

Local Doctor's Review

    Dake went to his local doctor to have a one month check up and evaluation. There is little to tell at this point.  He checked out fairly well with a concern with his blood pressure running low. We are to watch it and come back if it does not go up any.  
    Tomorrow we go to the pulmologist and have a check up there.
    This is a rather boring update but I would rather have it like this then a dramatic one. I have had my share of those and will take the mundane boring ones anytime. Check back later for this docs detail.  Hope they are boring too.

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