Today we are traveling to Savannah for my nephew's wedding. We left early because we picked Lyndsey up at the airport on our way in Birmingham. We waited last minute to wake up Dake to let him rest as long as possible. He was kinda grumpy because we rushed him and he does not like to rush. He slept most of the way to the airport. He said "Hi" to Lyndsey and then he was back to sleep. He wakes up occasionally to have us adjust his arms and/ or legs or for a drink of water. Sleeping on the way is best because he travels better this way and he will need all the extra rest he can get for the weekend.
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Welcome to Dake's Blog
This blog is designed to give you updates on Dake as he enters his journey to Johns Hopkins/Kennedy Krieger Institue Center in Baltimore, Maryland. This is a clinical trial in research focusing on the heart of Duchenne Muscular Dystrophy patients. This is not a treatment, it is research. Dake chose to participate in hopes for himself and for those who unfortunately follow behind him.
I will also share a little into our lives. Dake wants his story told....
The good, the bad and the ugly......
I will also share a little into our lives. Dake wants his story told....
The good, the bad and the ugly......
For more information on the research at Johns Hopkins on Duchenne Muscular Dystrophy scroll to bottom of the blog.
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