This blog is designed to give you updates on Dake as he enters his journey to Johns Hopkins/Kennedy Krieger Institue Center in Baltimore, Maryland. This is a clinical trial in research focusing on the heart of Duchenne Muscular Dystrophy patients. This is not a treatment, it is research. Dake chose to participate in hopes for himself and for those who unfortunately follow behind him.
I will also share a little into our lives. Dake wants his story told....
The good, the bad and the ugly......
For more information on the research at Johns Hopkins on Duchenne Muscular Dystrophy scroll to bottom of the blog.
Wednesday, June 15, 2011
Dake and Lyndsey in 1992
Dake is 8 years old wearing his Dad's UT jacket....Lyndsey is 7 wrapped up in her favorite sheet.
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