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Welcome to Dake's Blog

This blog is designed to give you updates on Dake as he enters his journey to Johns Hopkins/Kennedy Krieger Institue Center in Baltimore, Maryland. This is a clinical trial in research focusing on the heart of Duchenne Muscular Dystrophy patients. This is not a treatment, it is research. Dake chose to participate in hopes for himself and for those who unfortunately follow behind him.

I will also share a little into our lives. Dake wants his story told....

The good, the bad and the ugly......

For more information on the research at Johns Hopkins on Duchenne Muscular Dystrophy scroll to bottom of the blog.

Wednesday, October 12, 2011

Get On Your Mark.....Get Set....Go!

Tomorrow we get up early to start our whirlwind day. We will fly out of Huntsville at 7 ish in the in Baltimore around 9:45. Catch the shuttle (hoping they marked is to be a handicap van....little paranoid after our last adventure with the shuttle.....we have checked and double checked)and head to Kennedy Krieger Institute part of Johns Hopkins Hospital. Endure the appointment and and answer about a hundred questions on the study questionaire. Try to catch a bite to eat if there is time. If not we will ration our airplane peanuts or pretzels. Then back on the shuttle (different shuttle...this one is courtesy of Johns Hopkins) to the airport...reboard and head home...

Hoping it will be that simple. Phillip has been on the phone literally half the day trying to work out a transaction with the airlines. So at this point because of all the "boo boos" and confusion from Expedia I am hoping we have tickets to get on the plane tomorrow. I am beginning to think we might be allergic to airlines. CRAZY!

Please pray for a safe and prospers travel for us tomorrow. Pray they see some possible improvement for Dake.

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