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Welcome to Dake's Blog

This blog is designed to give you updates on Dake as he enters his journey to Johns Hopkins/Kennedy Krieger Institue Center in Baltimore, Maryland. This is a clinical trial in research focusing on the heart of Duchenne Muscular Dystrophy patients. This is not a treatment, it is research. Dake chose to participate in hopes for himself and for those who unfortunately follow behind him.

I will also share a little into our lives. Dake wants his story told....

The good, the bad and the ugly......

For more information on the research at Johns Hopkins on Duchenne Muscular Dystrophy scroll to bottom of the blog.

Monday, October 10, 2011

Back to Baltimore

This is a busy week for the family. On 13th marks three months for Dake in the Johns Hopkins study. We travel back to Baltimore for a checkup. We are flying in early on the 13th and have our appointment then jumping on the plane and heading back home. It will be a whirlwind but Dake sleeps better in his own bed so this is probably the best set up. Phillip is taking David's place this time. It will help David to be able to stay in work and give him a break. Phillip is so good to help us out. He is such a good friend to Dake and our family. He has wanted to go with him since he started but because of other obligations this is the first time he has been able to work it out.
Then Friday Lyndsey has a culinary function in Atlanta so she and I will head out for that adventure.
Please pray for our group with all the journeys that lie ahead.

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