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Welcome to Dake's Blog

This blog is designed to give you updates on Dake as he enters his journey to Johns Hopkins/Kennedy Krieger Institue Center in Baltimore, Maryland. This is a clinical trial in research focusing on the heart of Duchenne Muscular Dystrophy patients. This is not a treatment, it is research. Dake chose to participate in hopes for himself and for those who unfortunately follow behind him.



I will also share a little into our lives. Dake wants his story told....



The good, the bad and the ugly......

For more information on the research at Johns Hopkins on Duchenne Muscular Dystrophy scroll to bottom of the blog.



Friday, June 29, 2012

PART TWO of Swamp Tour


Continue with the Swamp Tour….


As the long, bumpy creature surfaced above the water she opened her huge mouth wide to catch a flying marshmallow, as big as a baseball, thrown by the guide on the boat. Marshmallows??? Really??? He explained to us the hibiscus flower grew wild in the bayou. Years ago the plant was called the Mallow plant. The mallow plant grew in the marsh, which became the” marshmallow” plant.  The roots were used to make a white sugary treats much like the marshmallow. Alligators would eat the roots of the plants. So, this is why  guide spends $35 a week to feed all the alligators we meet that day….which were about twenty. These gators would come only when he called their name one by one. He finished the tour by pulling an alligator three years old from a cooler behind him. He past the gator around and we all but Lyndsey held the alligator but she did admire her. (She said, she did notthave time to prepare mentally to hold the alligator.)   It was an awesome experience. The most surprising part to Dake and I  was how soft she was to the touch.


When we finished the tour the  guide  recommended a place on bayou. His buddy had for the best seafood around.  As we  exited the boat we chatted with  him and got specific  directions  to his  friend’s restaurant.


Let’s just say , “out in the boonies ‘has a whole new meaning to us now. We arrived to a place one  might call a “hole in the wall”. But as Brittany, my niece, pointed out there were very few walls so she wasn’t sure she could even call it by that name.


Looks sure  can be deceiving.  We devoured the best country low boil crab, shrimp, and crawfish ever. Great Day!

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