tag:blogger.com,1999:blog-6473132937379369778.post8180119050993770472..comments2023-07-27T05:20:16.053-07:00Comments on The Heart of Dake: HATREDUnknownnoreply@blogger.comBlogger2125tag:blogger.com,1999:blog-6473132937379369778.post-66559607931418878632011-07-15T23:19:43.296-07:002011-07-15T23:19:43.296-07:00As a nurse that has worked in nursing homes and cu...As a nurse that has worked in nursing homes and currently taking care of a Duchenne's patient in home, I can feel your pain. I know all to well about the call buttons and pads being moved to where they "should" be able to reach them, but most commonly can't. I also know about the want for independence. My ccurrent patient is 32, on a vent and only has movement in his right thumb. He did graduate college with a degree in journalism, but has had to live with his mother and brother all of his life. There are days that I can see that he wants to do for himself, but he realizes that he cannot. I will continue to follow Dake's story, as it is just now that I fully understand what his disease can do and put the family through. Thank you for sharing your story with the world. Dake, Lindsey, and the rest of your family will be in my prayers.Johnny Thompsonnoreply@blogger.comtag:blogger.com,1999:blog-6473132937379369778.post-48521551182790766352011-07-15T09:27:08.706-07:002011-07-15T09:27:08.706-07:00Lynn, I have no words, just your post brought me t...Lynn, I have no words, just your post brought me to tears. For a moment, I imagined that it was me writing this post about one of my children and I got so overwhelmed that I couldn't breathe. I pray for y'all and am so thankful that you are so proactive at finding a cure for this awful disease. I'm hopeful that one day (soon) a treatment will be discovered that could improve Dake's quality of life...and help other families who are (or will be) where you were 20 years ago. We will remain prayerful - for both potential treatment/help AND for your whole family. Love you all.Melissa B.http://www.themiddlethatcounts.comnoreply@blogger.com