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Welcome to Dake's Blog

This blog is designed to give you updates on Dake as he enters his journey to Johns Hopkins/Kennedy Krieger Institue Center in Baltimore, Maryland. This is a clinical trial in research focusing on the heart of Duchenne Muscular Dystrophy patients. This is not a treatment, it is research. Dake chose to participate in hopes for himself and for those who unfortunately follow behind him.

I will also share a little into our lives. Dake wants his story told....

The good, the bad and the ugly......

For more information on the research at Johns Hopkins on Duchenne Muscular Dystrophy scroll to bottom of the blog.

Wednesday, October 24, 2012

Equipment for Handicapped For Sale

 Our sweet son passed into his heavenly home on October 15, 2012

Soon the story of Dake's last few days will be posted for those who have asked for more details. These details are not easily coming so please be patient with us as we process our new reality.
We need to sale a few things to help us move forward. We donated many of Dake's equipment. We donated his bed, shower chair, his older wheelchair, (not new one, we are selling it for 1/3 of the price and will have details.

2002 GMC Savana,
white exterior, tan cloth interior,
dvd player, TV, VHS player, CD player, cassette player, radio
 middle bench seat folds flat to make a bed,
van holds wheelchair and 6 to seven additional passengers,
 braun lift in rear., captains chair for passenger next to wheelchair passenger,
 front and rear a/c.,
 mileage is 169500 approximately.,
 v 6 engine.
Tires in good confition, oil changed regularly.
call  256-503-3494 or 256-777-4101 or email
For Sale $5000.00
(A used Braun lift is approximate $3000.00 and a new lift would cost approximately $6000.00 and then the cost of installation is on top of that price,)

Permobil Wheelchair
 Brand new Permobil wheelchair with all the things need for Duchenne Muscular Dystrophy or others with multiple special needs. We traveled to Duke University, in NC, in 1996 and talked and worked with a physical therapist whom specialized in Duchenne Muscular Dystrophy.
The chair carried him beautiful for all the needs upto his end.
    Dake’s chair has only been used for six months.
 Top of the line, computerized, has every feature ever needed.
It has a chair elevator which allows the passengered to raise up and have a conversation with someone standing. It helps the passenger to reach unreachable items above his or her head.It help the user adjust to fit under any table in a restaurant with no problem and etc.
  It cost us 30,000.00, we are selling for $10,000.00
.We would love to give it to someone in need but it is not even finished being paid by us on our end.
The chair is a beautiful red.
If pics or more  info is need... please do not hesitate to call or email.

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