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Welcome to Dake's Blog

This blog is designed to give you updates on Dake as he enters his journey to Johns Hopkins/Kennedy Krieger Institue Center in Baltimore, Maryland. This is a clinical trial in research focusing on the heart of Duchenne Muscular Dystrophy patients. This is not a treatment, it is research. Dake chose to participate in hopes for himself and for those who unfortunately follow behind him.

I will also share a little into our lives. Dake wants his story told....

The good, the bad and the ugly......

For more information on the research at Johns Hopkins on Duchenne Muscular Dystrophy scroll to bottom of the blog.

Wednesday, November 2, 2011


It  has been awhile since my last post. Life has been busy and been doing some soul searching. (Jury is still out on that one.)
      Today I toured where Lyndsey will be teaching at Drake State Tech. College.  She will be in downtown Huntsville in the old Huntsville Times building. Huntsville is redoing several older buildings and restoring them.  Very Urban Chic.  Would love to have a studio down there. I am excited for her.  She is going to do so awesome and her students are in for a treat. (I am a little bias of course). She starts Nov. 7th.  She is so excited.
       I took Lyndsey and Dake out eat at Sam's and Greg's for lunch. We needed to celebrate Lyndsey's new start.  Dake had started to cough a little.  I thought I would get him a Coke to calm it down. He continued to cough and cough.  Once our order came I ordered to go containers so we could get him home and get a breathing treatment going.
      After the treatment he seems better but tired from all the coughing. Hoping this is a short lived incident and not the start of something worse.

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